Disabled and Exmo

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Disabled and Exmo

This is for those exmos that are disabled or were disabled or know someone who is. We've been given extra challenges not everyone would understand.

Location: support
Members: 20
Latest Activity: Jan 19, 2014

Discussion Forum

Mental illness & challenges

Started by Billy Forbes. Last reply by Laman2000 Mar 5, 2012. 12 Replies

I suffer from mental illness. Also a survivor of 2 accidents, which caused head injuries, and also suffer from parential abuse growing up (mostly from my father).With these, I am still able to…Continue

Disability and discrimination

Started by Naomi Nov 5, 2010. 0 Replies

Hello!  I am so happy to see this forum sparking up.  What a fantastic network we have, and so many colorful experiences to share.With that in mind, I was wondering if I could open up a topic…Continue

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Comment by Pixie on March 9, 2011 at 11:16am

Update:

I just got home from spending TWO hours at the clinic and they didn't do squat for my syringe issue. The resident wrote me a script for "a box" of them and said he thought their pharmacy would just fill the order without billing Medi-Cal. NOT!!! He wouldn't fax the paperwork out of my chart but gave me a slip to come back to urgent care on Friday morning to repack the wound again PLUS we can track down my doctor (cuz he's there only on Fridays) and have him do the paperwork and fax it. But it turns out the pharmacy manager isn't working on Friday so who knows if the paperwork will get submitted to Medi-Cal or not. Even if it does, my biggest fear is that it won't satisfy their requirements and we'll have to start all over again. I've been reusing needles for over a week now. I'm sooo frustrated I could "spit bullets". Thanks pollypink for the advice; I will definitely keep it in mind. I have thought about what Medi-Cal would say when I end up in the ER in a diabetic coma and they will be held legally responsible!! What would be their excuse then??? Thanks for the support and encouragement...I honestly appreciate it sooo much!! (I wish you could have been with me too!!)  Ok, thanks for letting me vent!!

Comment by pollypinks on March 9, 2011 at 6:46am
Pixie, What a bunch of pricks.  Everyone in this country should be given health care.  I've had to fight for mine, sometimes like an exhausted wounded animal.  Tell them your pain level today, and that you cannot live like this.  Tell them death would be better than this.  Very few doctors like to think they might be responsible for someone's suicide due to pain, not that you are going to do this, I'm just giving you a trump card to pull.  If they want to be assholes, give them some business back.  Oh, and write to Med-Cal and explain that death results when insulin isn't given, and you've written all this down in your will with instructions to have it delivered to a lawyer upon your death, due to no insulin products.  And no, the less drugs for pain is NOT better, because your quality of life is threatened.  You are worth more than you are getting.  I wish I lived near you.  I'd go with you.
Comment by Pixie on March 8, 2011 at 10:07pm

Hi there Pollypinks!

Welcome to our little group!  We don't chat as often as I'd like us to but I think all of us here are ready, willing and able anytime one of us needs support (but then, I'm the one who has the "gift of gab") :)

My pain levels vary but no, I don't have any doctors helping me and I don't take any pain meds either. I call it the "suck it up and bite the bullet" approach. Friday they lance a HS cyst on the back of my neck and packed it which I had repacked yesterday. It's over an inch deep and obviously painful but the county clinic didn't even bother to ask me if I wanted pain medication. But I try to tell myself the less drugs the better.

I have to go back to the clinic tomorrow because Med-Cal is refusing to fill the doctor's order for 180 syringes for my diabetes shots (6x per day). They want the doctor to "justify" why I need 6 shots. HUH? They already filled my insulin(s) prescriptions and increased my testing supplies but they don't wanna cough up the needles? And besides...what exactly do they mean by justify? Does patient/doctor confidentiality not apply here? So now I have to go back to the clinic early tomorrow morning and deal with it...which isn't gonna be easy cuz the doctor I see is only there 1/2 days on Fridays (he's a "fellow" level which is above attending). I'm NOT looking forward to this mess. But I've already been re-using my needles and that's a big NO NO. Wish me luck!!

Comment by pollypinks on March 8, 2011 at 6:55pm
Kenny, I know I've already posted too much for one day, but anyone who is supposed to be your friend and insults you deserves to be told to fuck off.  It's his loss.
Comment by pollypinks on March 8, 2011 at 6:53pm
Pushka, I have bipolar disorder so I'm always medicated for depression and mania.  Are you able to take anti-depressents for your  suicidal thoughts?  Please tell me you will talk to your doctor about this.  You don't deserve those thoughts.  They just show up, don't they?  And sometimes they don't leave quickly enough, right?  It's nuthin to be ashamed of, and I think everyone here would say you are way cool enough and deserve to feel as good as you can.  You've got enough on your plate.  And the anxiety, I think that should be addressed as well.  If you lived in California, I'd tell you to get an RX for some weed, and calm your nerves.
Comment by pollypinks on March 8, 2011 at 6:48pm
Shit Pixie, I'm so sorry with a pain level of 7 or so.  Do you have a decent doctor so you can keep that at bay?  I mean, a gazillion studies have been done on pain and pain control, and right now we're about 20 years behind Europe.
Comment by pollypinks on March 8, 2011 at 6:44pm
Shock of the century!  A group for disabled.  I hope I fit in.  Some days are good, and some aren't.  Three auto-immune disorders and bipolar syndrome, so life revolves around a cabinet of pills that keep me impoverished and doctor appointments.  I rarely mention any of this to people I meet, since I'm not in a wheel chair, or have a particular look.  They might really avoid me if they knew.
Comment by Pixie on November 8, 2010 at 11:47am
Hiya Pushka! Good to hear from you! I think we all have our times when we are actively posting alot and then there are other times when we just are in the mood to absorb what others have to offer. I, too, am sad to see we all have disabilities as a common denominator but I'm happy too, because I know there are genuine folks here who will accept us for who we are and not judge us based on our limitations. That means the world to me!! So, join in whenever the "mood strikes"! :)
Hugz,
Lisa Beth/Pixie
Comment by pushka on November 7, 2010 at 5:45pm
Sorry I haven't made much of a contribution to the group discussions yet, I've just been following most discussions on this site via my hotmail account this week, been too tired to follow each one up individually on the site itself. I'm really happy to have seen this group grow, and to have found so many people with so much in common..tho it is sad that it has to be disabilities we have in common..I'm sure we have much more too :) I've really enjoyed reading the discussions, and hope to be able to spend some more time here this week, and to contribute more towards them...All the best :) x
Comment by Pixie on November 6, 2010 at 12:32pm
Here's a newsflash: What if everyone treated others *exactly* the way they would like to be treated themselves? Wouldn't the world be a much happier, "friendlier" place?!! :) I know I strive very hard to live by this "Goldren Rule", I don't understand why it's such a difficult concept to grasp!!
 

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